Privacy Statement

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 Roborough Clinical Research

We’re excited to share news of our partnership with seasoned NIHR RRDN (National Institute for Health Research Regional Research Delivery Network) experts, seamlessly integrated into our practice team. In the pursuit of advancing medical research, these professionals, alongside our practice team, may access your patient record for pre-consented activities. This involves identifying potential eligibility for research opportunities and supporting recruitment and follow-up for clinical trials. This process operates under the lawful bases of Article 6 (public task) and Article 9 (substantial public interest) of the GDPR. Be assured, that your privacy and data security are rigorously safeguarded. This collaboration also supports NIHR and NHS’s pursuit in improving equality to access research. Any eligible individuals will be contacted by the practice, and their consent will be requested before any further processing takes place.

 

Roborough Clinical Research Privacy Statement for Devon Feasibility Sharing Group

 

  • This Practice works with the National Institute of Health and Care Research (NIHR) Clinical Research Network, Southwest Peninsula (NIHR CRN SWP) to offer our patients opportunities to take part in research relevant to their health.
  • As part of our support of health research, this Practice works with the southwest research team to carry out “feasibility reports”.
  • These reports are able to search through anonymised patient data from our practice show the number of people for whom a particular research study would be relevant.
  • This allows the southwest research team to see whether a research study could be offered to the population of Devon.
  • The feasibility group does not extract or access patient identifiable data and staff who undertake this work are bound by Confidentiality: NHS Code of Practice, General Data Protection Regulations 2018, and Good Clinical Practice (training for the delivery of research).
  • Patients who wish for their data to be excluded from the “top level” feasibility reports should request that the practice records an opt out on their record.
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